“When those things start to impair our daily functioning ability is when it becomes a problem. That’s when you’ve turned that corner into dementia,” says Rene Simmons, administrator for the Ginny and Bob Shell Alzheimer’s Center at Baptist Health’s Parkway Village, where residents have been diagnosed with dementia or memory loss.
Alzheimer’s disease is the sixth leading cause of death in the U.S. One out of every three seniors who dies each year has been diagnosed with Alzheimer’s or dementia. In Arkansas, more than 55,000 people are living with Alzheimer’s, according to the state chapter of the Alzheimer’s Association. Nationally, more than 5 million Americans are living with the disease. By 2050, that number could be as high as 16 million.
“Now that baby boomers have been turning 65 for more than 6 years, the instances of Alzheimer’s disease will continue to grow at an exponential rate,” said Susan E. Neyman, executive director of Arkansas chapter of the Alzheimer’s Association.
Alzheimer’s disease is the leading type of dementia, followed by Lewy Body. Someone who has been diagnosed with Lewy Body may have hallucinations and a blurred sense of reality.
“The preliminary symptoms for Lewy Body dementia and Alzheimer’s present differently,” said Elise Siegler, president of Alzheimer’s Arkansas, which provides free education and support for caregivers. “Memory lapses are mostly common in Alzheimer’s disease, where gait difficulties, tremors and hallucinations are signs of Lewy Body.”
One trend in dementia-related illness is earlier diagnosis.
“People tend to think of Alzheimer’s as a senior citizen disease,” Simmons said. “Diagnosis, research and awareness have gotten better. People are being diagnosed earlier.”
Early onset diagnosis occurs before age 60. Diagnosis after age 65 is considered late onset. At Parkway Village, some of the youngest patients are in their 40s and 50s.
“People are showing signs of dementia earlier than what they realize,” Simmons said. “Once they are diagnosed, they sometimes realize they had been showing signs or symptoms five to 10 years earlier.”
Dementia affects a patient and their caregivers. Forty percent of caregivers pass away before the patients.
“You’re just exhausted, physically and emotionally,” Siegler said. “They don’t take care of themselves because they’re too busy taking care of loved ones. The lack of sleep and nutrition and stress takes a toll.”
In the greater Little Rock area, the average cost of memory care is $6,000 per month, while the average cost of an in-home companion is $20 per hour.
Alzheimer’s Arkansas has more than 72 support groups throughout the state and the organization provides some financial assistance to caregivers.
“Placing someone in residential care is probably the most difficult decision someone has to make. So much goes into making this decision,” Simmons said. “It’s best to not have to make this decision in a crisis, but to do some research and ask questions to know your options.”